Volunteer With Us
Why Volunteer?
We're on a mission to speed up research and find treatments or a cure for PSSD. In order to do this, we need volunteers to help raise awareness about PSSD so the medical community cannot ignore us any longer.
Volunteering has given many people a practical approach to living with PSSD. It has helped people reduce feelings of helplessness and feel a sense of empowerment by taking action.
You will be joining a global community who are working hard to make a difference.
WILL MY IDENTITY/ PRIVACY BE PROTECTED?
We understand the importance of your privacy and will ensure that all our volunteers personal information will be treated with confidentiality and never shared.
Some of our volunteering opportunities can be completed without sharing your name, showing your face, or sharing any other personal identification.
Please take a look below at the list of volunteering opportunities which show the level of anonymity.
How much time will it take?
The amount of time you want to spend volunteering is entirely up to you. Some of our volunteering tasks take as little as 5-10 minutes a week, with our more in-depth projects taking longer.
Any amount of time you give will advance our mission.
Volunteering is flexible and you have the freedom to choose how you want to participate to suit your lifestyle.
HOW DO I KNOW IF MY HELP WILL BE EFFECTIVE?
We couldn’t be where we are today without our volunteers!
We are getting more media attention than ever before because of our combined efforts.
Take a look at some of the latest media stories, which our team has helped support.
What volunteering opportunities are there?
Report PSSD To Your Country Regulator
Report your PSSD to your health agency in your region. It is important that when you report your symptoms, you should list them all in detail. If you only write ‘PSSD’, all the wide range of symptoms is lost and your report will not count.
The Medical Dictionary for Regulatory Activities (MedDRA) added a code for post-SSRI sexual dysfunction (10086208) in 2021. When reporting, you might want to specifically mention this code in addition to providing details of your symptoms.
To find your regional health agency and report your side effects, please click the icon above.
Send Adverse Reaction Report To RXISK
Rxisk is run by David Healy, one of the leading advocates in the world for exposing PSSD. It's used to create a centralized database of people with PSSD.
By reporting your condition, you may be contacted to participate in future studies of PSSD. Complete a form by clicking on the icon above.
Contact your Local Government Representative
Contact your government representative and ask them to support calls for research funding and better information for doctors and patients.
For those in the UK, ask your MP to join the ‘Beyond Pills APPG’ and advocate for recognition regarding PSSD. Please click the icon above for the Beyond Pills website.
Share your story to our photowall
Share a brief summary of your PSSD experience on our websites Photo Wall! These images have all been submitted from PSSD sufferers around the world. This display helps perceive the experiences of what sufferers are going through with this condition. These can be done anonymously!
Please submit by clicking the image above.
Raise awareness By Sharing Your Story
Share your story via Patient Spotlight for our website! These stories have all been submitted from PSSD sufferers around the world. This helps to convey the message of the real experiences that sufferers go through daily.
Please click the image above to proceed with your submission.
Raise awareness on Twitter/ X
Help us spread the word about PSSD on X! Use the hashtag #PSSD in your tweets regarding your experience and follow @PSSDNetwork for updates.
Please proceed by clicking the icon above.
Raise awareness on TikTok
As PSSD has gained traction via TikTok over the years, it still stands as our most viewed platform. We need more video submissions of your experiences! These can be anonymous if preferred. Please view our uploaded TikToks @pssd_network by clicking the icon above.
Please send your video to: contact@pssdnetwork.org
Share Your Story With The Media
As PSSD has gained more recognition due to the well-known publications it was featured in, we encourage everyone to step up and share their story in the news! You can find all of our existing articles under the ‘Media’ page.
Please reach out to: contact@pssdnetwork.org if you are interested in speaking to a journalist!
We also encourage you to search for Sexual Health Journalists and reach out to them personally if we do not have any current opportunities.
I DON’T SEE A VOLUNTEER OPPORTUNITY THAT INTERESTS ME. CAN I VOLUNTEER IN ANOTHER WAY?Yes absolutely! We are always open to exploring other ideas you may have. Please let us know by contacting our volunteer Nick at: nick.alves@pssdnetwork.org