Community groups rules

PSSD sufferers have it rough, so please do not make it harder for others or yourself. It is important to adhere to the following rules.

Continuously ignoring the rules will result in being you removed from the group.

  1. Be respectful, no hate speech or any form of -ism, no toxic attitudes or hostility towards others

  2. Do not insinuate that someone does not have PSSD. It is up to the individual to figure out their condition. You can offer advice and support, but refrain from diagnosing them.

  3. Avoid supplementation or self-medication discussions, do not suggest that someone should try specific medications or supplements, people can "crash" (get worse significantly), and nobody wants to bear the responsibility of seeing someone crash. There are a lot of places where people can discuss these topics, but not in our group.

  4. Do not spread unnecessary doom, many people have it rough already, we should keep the chat a safe space for everyone. Feeling down is ok, but don't catastrophize. Don't be overly negative all the time, either.

  5. Avoid unnecessary hatred towards medical professionals or psychiatry. It's perfectly fine to talk about your personal (negative) experiences with doctors

  6. No discussing / promoting of conspiracy theories (e.g. saying that eugenics are involved in PSSD)

  7. No discussion of suicide

  8. Do not minimize the severity of PSSD in any way, this includes saying things such as ‘there is more to life than sex’. PSSD is a constellation of cognitive impairment, emotional blunting and sexual dysfunction. Severe cases are unable to experience positive emotions, which is detrimental to their mental health and in no way related to sex.

  9. Do not promote certain doctors and/or treatment methods

  10. All scientific claims must be backed with actual science, pseudoscience is not allowed

  11. Avoid speculating about what the mechanism behind PSSD might be

  12. No authoritative speak (e.g. claiming you are an expert on PSSD and giving medical advice)

  13. No determining the severity of another's condition, e.g. "you’re a mild case"

  14. Do not undermine the severity of other people their PSSD, everyone has it rough

  15. Avoid repeatedly asking the same question in a short interval (e.g. asking the same question daily) we understand that people feel hopeless, but we should keep things reasonable

  16. Do not post sensitive or exposing pictures. (e.g. nudity)

  17. No discussion of religion or politics

  18. Do not talk down the severity of other diseases or other rare disease communities such as the LC and CFS/ME communities.

  19. Don’t use terms such as 'brain damage' and 'irreversible' when referring to PSSD. We’re meant to support each other, not scare each other.